Reflections from the UHN PiPER Research Conference on the power of patient partnership, the promise of OpenNotes, and what it means to create impact through lived experience. Featuring new insights from CAMH’s Digital Mental Health Lab and a call for more transparent, trauma-informed care.

What does empowerment really mean in the recovery process? I had the chance to speak at CAMH’s Patient & Family Experience Week on this very topic. In my latest blog, I share personal reflections, key takeaways from the panel, and why lived experience matters more than ever.

The Long Road to a Diagnosis. From misdiagnosis to daily struggles—inside the reality of living with a rare disease.

Imagine a life filled with mysterious symptoms, ER visits, gaslighting and more. This was my reality for four decades until MCAS diagnosis.